Part 1 Part 2 Part 3 Part 4 Sometimes chicken, chips and salad taste absolutely incredible. And it has very little to do with the chicken, chips and salad. Like when we were sitting in a room with a dear friend, a mate, a brother, who had jumped in the car and travelled 1.5 hours to bring this meal to us. It tasted good because it was greasy and salty. It tasted good because it was a break from buying hospital food. It tasted good because it was eaten in the company of a friend, who couldn't change any of the circumstances we were in, but had come to sit with us, in them. We had been in the hospital for a few days. Our boy had moved from NICU to High Dependency and then to Low Dependency. This is the direction you want to move in. He had lost some of the various tubes and masks and breathing apparatus, and we were finally allowed to hold him. We had been told we would likely be discharged the next morning. And then, things turned backwards. Up until this point, we had been feeding Noah through a tube. It went in through his nose and delivered Mama's precious milk into his little stomach. We would sit by his bed, and slowly squeeze milk from a syringe and watch it move through the tube. The thing about this way of feeding is you can pull the syringe back to check the contents of the stomach. So, I'm treasuring this moment of feeding the little guy by squeezing milk through a syringe, because when you can't do the things you thought you would be doing on day 4 of your child's life (like sticking them in baskets of soft stuff and taking photos) you'll still enjoy any interaction you get - and then a nurse pulls the syringe back to see what's going on in Noah's stomach and it fills up with dark, chunky liquid 'bloody aspirates.' And suddenly, things turn backwards. Move him back to High Dependency. Put all the gear back on. Poke around to find a vein and put the drip back on that tiny, fragile arm. Try not to miss, again. More pricks on the foot, more yelps of shock and confusion you'll be hear for a few more days at least. So, when Phill calls like he has every day prior this time I am crying. I have been trying to be strong man for tired wife and unwell son but it is shit feeling like the journey home through the front door, as a new family has just been taken away from you again. And you wonder, is this what it means to be a parent? just when you think things are secure 'Low Dependency' normal your gut can be flipped upside down in a second and so a few hours later when you are worn out from emotion and you do not know how to answer people texting to ask how things are going chicken and chips and salad with a good mate who is happy to just listen can be the best tasting meal imaginable and when the same friend takes all your dirty washing back to the Coast (because you didn't pack for an indefinite hospital stay) and brings it back the next day all clean and dry and you have other friends bringing care packages, full of colouring-in books, healthy snacks, thoughtful notes and you can feel the prayers of your faith community already invested in this human they are yet to met and when you finally do arrive home, to watered plants cards in mail box and meal after meal after meal and then, as days pass reflux rears its head sinks in its heels and you move from that intense and dramatic struggle to this more generic, ordinary, marathon where normal is very hard and yet here, you have friends lending you cars and still bringing meals and loving you beyond what you have the capacity to return this is when you realise it may take a village to raise a child but right now it feels like the village is raising the parent and maybe that is exactly what the child needs and if the parents are taken care of like this then there's a pretty good chance this child is going to see what love looks like. So to the village of incredible humans who have loved us beyond what we have the capacity to return on behalf of my child thank you for helping raise this parent and showing me what love looks like
0 Comments
Leave a Reply. |
Categories
All
Archives
September 2023
|